The following information has been shared with me from other caregivers within the LBD community so I thought I would put this out there for others.
The link below holds information about a program run by Jim and Helen Whitworth of Arizona. Jim is a co-founder of the LBDA and a former caregiver. Helen, his wife, [...]
Archive for September, 2008
Riding The Rollercoaster With The Lewy Body Dementias
Posted in Lewy Body Dementia, tagged Arizona, LBD, LBDA, Lewy Body Dementia, Lewy Body Dementias, Parkinson's Dementia With Lewy Bodies, presentation, Program, Riding the Rollercoaster, Rollercoaster on September 28, 2008 | 3 Comments »
Last Words, Of Sorts
Posted in Lewy Body Dementia, tagged Dad, Disease, Last Words, Love, Sad, Words on September 22, 2008 | 3 Comments »
I realize the blog has been a bit of a downer lately and I’m really hoping that will change soon, but, it reflects what we are going through at this time. I wish I could say things were getting better, but they haven’t been. This disease is so tiring and constantly toys with our emotions.
In [...]
Does He Know
Posted in Lewy Body Dementia, tagged Aggressive, Bed, Break Down, Breaking Point, Combative, Dad, Denial, Disease, Doctor, Episodes, Frustration, Hallucinations, Lewy Body Dementia, medication, Seroquel, Sleepy, Tired on September 18, 2008 | Leave a Comment »
This past weekend was a really tough one for Dad. He was not reacting well at all to a change in his medication, or so we think. Because Dad has been so tired and sleepy lately, one of his doctors recommended reducing his seroquel to half of what he takes now. At first it seemed [...]
Doctor Visits As A Family
Posted in Lewy Body Dementia, tagged Appointment, Blood Clot, Care, Caregiving, Caring, Dad, Doctor, Drug, Family, LBD, Lewy Body Dementia, Lewy Body Disease, Medical, Phase, Seroquel, Skinny, Support, Thin on September 8, 2008 | 1 Comment »
Mom and I took Dad to his doctor’s appointment on Friday. Things went pretty well and Dad spoke a little with the doctor which was good. He asked the doctor how he was doing and overall, she said he was doing fine. She wants him to get out of bed earlier and remain active- not [...]
Sleepy, Tired
Posted in Lewy Body Dementia, tagged Bed, Blood Clot, Blood Pressure, Coumadin, Dad, Drugs, Namenda, Over-Medicated, Phase, Sleep, Sleepy, Speech, Therapist, Tired on September 4, 2008 | 7 Comments »
Dad is just so sleepy and tired these days. He’s not getting out of bed until very late afternoon- no matter what we do. The only time we’re able to get him going in the late morning is when the speech therapist comes twice a week and that can be such a battle in itself. [...]
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