Archive for November, 2009

Just a quick update to let everyone know the past few days for Dad have been wonderful. On Tuesday he was exceptional and it was almost like there was no horrible Lewy messing with his body. Mom and Dad were even able to head out to the movies and for dinner. This disease is such a crazy rollercoaster- one day it’s just awful, the next day it’s as if nothing is wrong. Hopefully Dad can stay better for a while because things have certainly been rather difficult lately.

In any case, we wish everyone a happy and healthy Thanksgiving. Cheers!


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Celebrate National Family Caregivers Month November 2009 by signing the petition letter for a United States postage stamp honoring family caregivers. The National Family Caregivers Association (NFCA) is in need of 2,000 more signatures and you can be one of them! Visit NFCA’s Web site by clicking here and then click on the U.S. Postage Stamp button on the home page to submit a letter to the Citizens’ Stamp Advisory Committee. And please pass this message along by posting it to your Facebook pages, Twitter, or other networking sites. Every signature helps!

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Husband and I are heading out to California tomorrow morning and we’ll be there until after the new year. I know Mom is certainly looking forward to our return and I’m happy to get out there to help her. Things have been very stressful for her lately. She definitely needs some respite and assistance as Dad has been quite the handful, especially today. He’s been incredibly difficult to manage with his raving hallucinations- he’s completely out of touch with reality. There’s no coaxing him back to the real world- he just lives in a world terrorized by his hallucinations. It’s crazy how this Lewy roller coaster works because yesterday he had such a good day and today you would think he needed to be in the hospital or something.

There’s a lot to be done while we’re out there and hopefully we can make some progress on getting things sorted.

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Mom took Dad to see the doctor last week. He has been having constant hallucinations that just won’t quit. The poor guy is a tortured soul and Mom is completely sleep deprived. The Doc prescribed him Remeron (Mirtazipine) to help lessen anxiety and it also increases drowsiness, which should hopefully help him sleep a bit more instead of battling his hallucinations all night long.

The first few nights Dad took the Remeron it worked like a charm. He slept the entire night through until 10:30am. However, its success was short-lived and Mom has been awake every night since, all night long without anymore than 10-15 minutes of sleep at a time. He’s constantly haunted by his hallucinations and we just feel like no matter what we/the doctors try, nothing works… it’s just an awful time for both Dad and Mom. I just wish we could stop it somehow.

P.S. And for those wondering, Dad is already taking Seroquel. It helped for a long time but right now it’s not fitting the bill. He’s still taking it but it does not stop or even subdue his hallucinations at this time.

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Thanks to all those who have served and currently serve in the military.

Thanks, Dad, for your years of service in the Navy… we love you!

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Save the date to join the Parkinson’s Disease Foundation (PDF), online or by phone, on Tuesday, November 17, at 1 p.m. ET for an educational webinar, “How to Take Care of the Parkinson’s Caregiver,” with Barbara Habermann, Ph.D., R.N., associate professor, Department of Family Health Nursing at Indiana University School of Nursing. This FREE 60-minute PD Expert Briefing is part of PDF’s recognition of National Family Caregivers Month.

Many people often say that Parkinson’s affects more than the person living with the disease – it affects the entire family. Care partners – whether they are a spouse, a child, a parent or a friend – can experience significant life changes when caring for a loved one living with PD.

Dr. Habermann will explore common emotional responses that Parkinson’s care partners may experience. She will also identify signs of depression in the person with Parkinson’s and the care partner, point to specific areas where the partner may require help or assistance and let participants know about resources available to care partners.

How to Take Care of the Caregiver will be presented both as a webinar (web-based seminar) – where participants can watch a slideshow presentation online and hear an audio presentation either through their computer’s speakers or by calling a toll-free number – and as an audio-only presentation – for those who prefer to listen in by calling the toll-free number.

Participants joining the live session will have the opportunity to directly ask Dr. Habermann their own questions during the last 20-30 minutes of the presentation. This PD ExpertBriefing will also be available on the PDF website for up to one year after the live event.

For more information about this session, click here or call 800/457-6676. To register now, click here.

Info take from PDF’s site.

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November is National Family Caregivers Month. It is organized annually by the National Family Caregivers Association (NFCA) as a time each year to thank, support, educate and empower family caregivers.

In celebration of National Family Caregivers Month November 2009, the National Family Caregivers Association is once again offering a FREE teleclass/webinar to family caregivers across the country. “Safe & Sound: How to Prevent Medication Mishaps” will be offered on Thursday, November 12, at 2 p.m. EST.

This FREE teleclass/webinar will help you understand when medication problems are most likely to occur and what you can do to prevent them. There are approximately 100,000 deaths each year due to adverse drug reactions. This teleclass/webinar will give you the tools you need to minimize the possibility that you or your loved one will experience an adverse medication event.

You Will Get Answers to These Questions:

  • Why should I learn how to prevent medication errors and events
  • When are medication problems most likely to occur
  • What can I do to minimize risks associated with medications
  • How can I help my loved one be more adherent to medication regimens
  • How can I prevent medication problems at the hospital
  • How can I prevent medication problems at the doctor’s office
  • How can I use my community pharmacist as a resource

Sign up for Safe and Sound: How to Prevent Medication Mishaps, today – and please pass this along to your family and friends. Click here to register now. You can participate for FREE by telephone or online.

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