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Archive for September, 2010

If you are going to do just one thing this year to raise LBD awareness, tell Congress about LBD and about your support for a very important act going to the House floor for a vote as early as next week!

On Friday, the Parkinson’s Action Network announced the following news:
On September 23, the full House Energy & Commerce Committee unanimously passed by voice vote H.R. 1362, the National Neurological Diseases Surveillance System Act. The legislation will establish a national data surveillance system that will track and collect data on the epidemiology, incidence, prevalence, and other factors of neurological diseases, including Parkinson’s and multiple sclerosis.

The surveillance system will be developed and maintained by the Centers for Disease Control and Prevention (CDC). This system will provide researchers and epidemiologists with a coordinated system of health data on neurological diseases and should fuel further research into neurological disorders like LBD. (Visit the Parkinson’s Action Network to learn more about the bill.)

Your Representative needs to hear from you today! Make sure your Member knows that the Lewy body dementia community strongly supports this important legislation. LBDA has developed a custom message about LBD and this act for your use, and the Parkinson’s Action Network’s website does the rest!
Please voice your support by e-mailing your Representative in support of H.R. 1362.

CLICK HERE TO TAKE ACTION

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Mark your calendars for the second annual Allan D. Morrison 5K Run/Walk. The event, benefiting the Lewy Body Dementia Association (LBDA), will take place in Melrose, Massachusetts on Saturday, October 16, 2010 at 10:00am.


Help raise awareness and much needed research dollars for Lewy Body Dementia. For more information, to register for the race or to make a donation, check out the website by clicking here.

image taken from race website.

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